Tuesday May 29th at 7pm- Deputies who want to stand for States’ Champion for Disabled People will be invited to the Cotils for an Election Hustings

Hi Everyone On Tuesday May 29th at 7pm, all Deputies who want to stand for States’ Champion for Disabled People will be invited to the Cotils for an Election Hustings (Note: change of date, was 28th May but that’s ‘Douzaine Night’). Each candidate will be interviewed separately by the audience to help voters make up their minds. It should prove a really interesting insight into how our Deputies minds tick when it comes to disability issues and just what skills and experience we could have on our side in the Assembly. Channel TV have already said they are keen to be there, so it is VITAL that the Harry Bound Room is full. After all, if disabled islanders and the people who support them don’t seem concerned about who their Champion is, Deputies might start to wonder how important the Disability Strategy really is…. So please be there if you possibly can, this is an easy, interesting and fun way to do your bit to help get the Disability Strategy through the States. Bring your spouse, your parents, your siblings and your kids…. Tell your doctor, your OT, your Key Worker, the volunteers at your charity, the bloke in Housing who is always helpful… Everyone who supports disabled islanders is able to vote too. If you will have difficulty getting transport to the Cotils, let me know and I’ll see if someone can give you a lift. If you (or your close family) haven’t registered to vote yet, email your name(s) and address(es) to info@disabilityalliance.org.gg. The full details of the voting process are attached. Any questions, don’t hesitate to ask. Thanks everyone! Shelaine Chair – Guernsey Disability Alliance 07781 451310

Car Boot Sale in aid of ADHD Sunday 27th May 12

CAR BOOT SALE (In aid of the Guernsey ADHD support Group)

SUNDAY 27th May 2012  9.30AM-12pm (set up from 9am)

£5.00 per car (contact Amanda 07781 404049)

SPECSAVERS CARPARK La Villiaze St Andrew’s

If you have any items you wish to donate please email pgarnham@cwgsy.net to arrange colelction ot delivery. thanks

ADHD SUPPORT GROUP – Coffee & Chat evening next one MONDAY 21st MAY 12

ADHD SUPPORT GROUP – Coffee & Chat evening next one is MONDAY 21st MAY 12 at:- L’islet , Salvation Hall-Time 7.15pm till 8.30pm

This is a chance to meet up and offer support and strategies to one another.

( Just pop in anytime for a chat , please note No Guest Speaker this month)

NEW MEMBERS WELCOME

ADHD/SEN Babysitting List as at May 2012, email pgarnham@cwgsy for list which has full details of experience and hourly rate etc

Name

Tel Number

Email/Facebook

Jo Horsepool
07781 122234 
jhorsepool@cwgsy.net
Debbie Brouard
07781 116638
Inbox on Facebook
Kirsty Symphorien
07839 143277   233159
Inbox on Facebook
Laura Oke
07781115725
oke23@cwgsy.net   or
 Inbox on Facebook
Anne-Marie Harmsworth (nee Wyeth)
 
07921 819494
 713348 
annemariewyeth@hotmail.com

Chairty bid wars – facebook page -raise money for ADHD & other Charities

I am having a break for now from listing any items as i am busy with a lot of arrangements for the ADHD Support Group for April. So if any one else wants to list items on behalf of ADHD that would be greatly appreciated.

Easy to do just put a picture up, a few words about the item, put a starting bid e.g £1 and end date and state proceeds are for ADHD Support Group, come back to the page to see who has won and make contact for them to collect and pay for item. Pay funds direct into ADHD bank account or pass on to Chairperson Karen Garnham pgarnham@cwgsy.net   Tel 07781 424924

http://www.facebook.com/groups/292418804145252/

We are seeking funding to be able to continue our programme of bringing a range of ADHD specialists to the island

The ADHD Support Group was formed in 2010 to bring together parents and families living with Attention Deficit Hyperactivity Disorder (ADHD) in the Guernsey community. 

Since inception, our membership has grown to 180 families all of whom are living with the consequences of this condition. While the group started out as an informal meeting of those in the same boat, it has grown into much more.

 More than 500 children, and their families, in Guernsey are likely
to be affected by ADHD

 We are seeking  funding to be able to continue our programme of bringing a range of specialists to the island to expose the local community to the current thinking and teaching from the UK and internationally. 

As an example, the support group has organised for a leading specialist to visit Guernsey for a series of workshops and interactive sessions with families, clinical practitioners and teachers on Friday 27 and Saturday 28 April.

 Lorrine Marer is an experienced behavioural specialist who has been working in the ADHD field in the UK and US for more than a decade. She has two sons, now adults, who were diagnosed with ADHD and Dyspraxia as children and has trained in many aspects of behavioural and learning difficulties.

She is a firm believer that that society and, in particular, the education system, needs to gain a great deal in further understanding about all these associated disorders.

Specialising in challenging behaviour and aggressive conduct disorders, she has had huge success in breaking well-established patterns of inappropriate behaviour and getting to the root of complex family problems. The strategies are now being used as a critique in universities and colleges around the country, as well as by health professionals in other countries. She is also asked to contribute as a specialist in this area to a number of radio and television programmes. She has made two well received series for Channel 5, called “Families Behaving Badly” and “The Teen Tamer”.

 In Guernsey, Lorrine will run a series of workshops and sessions designed specifically for those in Guernsey that deal with ADHD from the families to those teaching and treating children with ADHD.

Lorrine is the first of many specialists the ADHD Support Group hopes to bring to the island. We want each of these events to be free-of-charge to participants in order to get as many interested parties there as possible and to ensure there is no socio-economic discrimination when tackling these issues.

What is ADHD

ADHD affects around 5% of the population and is normally diagnosed in childhood although there are many adults who remain undiagnosed with the condition which can affect their ability to learn and/or their behaviour. ADHD manifests itself in a number of ways by is often labelled as “naughty” or “badly behaved”. It can impair learning and leads to many ADHD children and adults suffering from extremely low self-esteem, inappropriate behaviour and a lifetime of misery if not treated or understood.

ADHD is a concept which refers to children whose behaviour appears impulsive, overactive and/or inattentive to an extent that is unwarranted for their development age and is a significant hindrance to their emotional success.

ADHD is a diagnosed condition that affects the chemicals in the brain. You can’t see it; we often don’t understand it and it can be very confusing. There are many theories about when, why or how people get it. It is not curable but it is treatable. We do know that it is genetic and that it really does exist despite there being a great degree of cynicism.

It is not caused by “bad” parenting and we aim to remove that damaging assumption. Teaching or dealing with ADHD-affected individuals can be difficult but communication methods and relationships can be improved, managed and helped with training.

ADHD Guernsey aims are to continue to support families living with ADHD while highlighting the issues facing these families including education resources, information and support. The overarching objective is to ensure there is the best information and resources available to give ADHD children the best possible educational and family experiences.

We are only too aware of the pressures on the Child and Adolescent Mental Health Services (CAMHS) in terms of the volume of people they treat and the resources they have at their disposal. While we would never claim to be “experts” we see the role of the ADHD Support Group to assist CAMHS; to raise ADHD issues at the highest levels on the island and to provide another resource for families in this area.

A key objective for 2012 is to build our list of specialists to bring to the island to expose clinicians, teachers, families and other interested sectors of the community (prison services, the Education Department, health care specialists such as osteopaths, speech therapists and health support staff) to a variety of thinking on the issue of ADHD.

As with many charities, The ADHD Support Group requires funding both to continue to involve ourselves with national charities, to inform our training and development officer and empower her to attend the right conferences nationally and to ensure we continue to be able to expose our island community to the minds working on this condition and its consequences.

email pgarnham@cwgsy.net  or Tel 07781 424924 if you can help with funding

Dyslexic diagnostic assessments

My school tells me that they have done a test in school and that my child is mildly dyslexic and so does not qualify for any help.A. Tests conducted in school by a teacher may not be diagnostic assessments but only screening tests. These flag the probability of a pupil having dyslexic tendencies for further investigation. They are not 100% reliable in their diagnosis and do not give a detailed analysis of a child’s profile of strengths and weaknesses.

Unfortunately some teachers have not received sufficient training to appreciate the limitations of screening tests. In addition, a bright child with significant dyslexic difficulties, on a good day may not show up as clearly as they should on this type of test. Discuss your concerns with the SENCO and request further investigation and dyslexia support.

Where schools do not have in depth training in specific learning difficulties, misleading assumptions can sometimes be made.

Where dyslexia is not well understood in a school, it is not uncommon for children with unidentified and unsupported dyslexic difficulties to become frustrated, distressed and develop behavioural issues. Difficulties with maintaining concentration and focus, being easily di…stracted and having difficulty in processing information are very commonly associated with dyslexia.

Behavioural problems can be a symptom of an underlying difficulty, not a problem in their own right.

Dyslexia frequently co-occurs with other specific learning difficulties including ADD/ADHD, dyspraxia and dyscalculia. It can also co-occur with Asperger syndrome and high functioning autism.

Your child may be referred to CAMHS (Community Mental Health Services) for investigation. However you should be aware that medical and mental health professionals are not usually trained to diagnose dyslexia and this may not be the most appropriate route for diagnosing specific learning difficulties.

Make a firm request to the SENCO for a referral to the Educational Psychologist for an assessment for specific learning difficulties which may indicate dyslexia.
You could also contact your Local Dyslexia Association
for advice on getting an assessment.

What are Specific Learning Difficulties?

What are Specific Learning Difficulties?
Specific Learning Difficulties (or SpLDs), affect the way information is learned and processed. They are neurological (rather than psychological), usually run in families and occur independently of intelligence. They can have significant impact on education and learning and on the acquisition of literacy skills.

SpLD is an umbrella term used to cover a range of frequently co-occurring difficulties, more commonly:
Dyslexia.
Dyspraxia.
Dyscalculia.
A.D.D/A.D.H.D.
Auditory Processing Disorder.
SpLDs can also co-occur with difficulties on the autistic spectrum such as Asperger Syndrome.

Be aware that similar terminology can lead to confusion. For example, the term ‘Learning Difficulties’ is generally applied to people with global (as opposed to specific) difficulties, indicating an overall impairment of intellect and function.

In general, a student may be diagnosed with a SpLD where there is a lack of achievement at age and ability level, or a large discrepancy between achievement and intellectual ability.

An untrained observer may conclude that a student with a SpLD is ‘lazy‘, or ‘just not trying hard enough’. For example they may find it difficult understanding the large discrepancy between reading comprehension and proficiency in verbal ability, or between reading level and poor written work. The observer only sees the input and output, not the processing of the information. Deficiencies in the processing of information can make learning and expressing ideas difficult or impossible tasks.

Because of the high level of co-occurrence between different SpLDs, it is important to understand that each profile is unique to the individual and can appear in a variety of ways. The effects of a SpLD are manifested differently for different students and range from mild to severe. It may be difficult to diagnose, to determine impact, and to accommodate.

Unidentified and unsupported dyslexia and related conditions can lead to emotional distress, frustration and poor self-esteem. This can result in a child becoming withdrawn, or more commonly to develop behavioural issues. Rather than focusing on behavioural problems, schools would be advised instead to address the possible underlying causes, which in many cases may be previously undiagnosed specific learning difficulties.

Types of Specific Learning Difficulty.

Dyslexia: Dyslexia is a hidden disability thought to affect around 10% of the population, 4% severely. It is the most common of the SpLDs. Dyslexia is usually hereditary.
A student with dyslexia may mix up letters within words and words within sentences while reading. They may also have difficulty with spelling words correctly while writing; letter reversals are common.
However Dyslexia is not only about literacy, although weaknesses in literacy are often the most visible sign. Dyslexia affects the way information is processed, stored and retrieved, with problems of memory, speed of processing, time perception, organisation and sequencing. Some may also have difficulty navigating a route, left and right and compass directions.

Dyspraxia: is a difficulty with co-ordination and the organisation of movement; thought-processing can also be affected. Language comprehension may not match language production. Articulation and pronunciation may also be affected.
In common with dyslexia, there are memory and organisational weaknesses. There may be weakness in social skills and difficulties judging socially acceptable behaviour, anxiety in unfamiliar situations, orientation/place-finding problems and the experience of sensory overload. Often co-occurs with dyslexia.

Dyscalculia: is a difficulty understanding maths concepts and symbols. It is characterised by an inability to understand simple number concepts and to master basic numeracy skills. There are likely to be difficulties dealing with numbers at very elementary levels; this includes learning number facts and procedures, telling the time, time keeping, understanding quantity, prices and money. Difficulties with numeracy and maths are also common with dyslexia.

A.D.H.D/A.D.D. Signs of Attention Deficit (Hyperactivity) Disorder include inattention, restlessness, impulsivity, erratic, unpredictable and inappropriate behaviour, blurting out inappropriate comments or interrupting excessively. Some students come across unintentionally as aggressive. Most fail to make effective use of feedback.
If no hyperactivity is present, the term Attention Deficit Disorder should be used: these individuals have particular problems remaining focused so may appear ‘dreamy’ and not to be paying attention. Students with this condition are very easily distracted, lose track of what they are doing and have poor listening skills. By failing to pay attention to details, they may miss key points. Often co-occurs with dyslexia.

Auditory Processing Disorder: frequently associated with dyslexia, students may have difficulty understanding when listening, expressing themselves clearly using speech, reading, remembering instructions, understanding spoken messages and staying focused.

Autistic spectrum: autistic characteristics such as Asperger syndrome, can co-exist with the conditions described above. Those affected often demonstrate unusual behaviours due to inflexible thinking, over-reliance on routines, a lack of social and communication skills.

Some common characteristics of SpLDs.

Memory difficulties.
Organisational difficulties.
Writing difficulties.
Visual processing difficulties.
Reading difficulties.
Auditory processing difficulties.
Time management difficulties.
Sensory distraction: an inability to screen out extraneous visual or auditory stimuli.
Visual Stress.

Between 35-40% of pupils with dyslexic difficulties may experience visual disturbance when reading:
Text can appear distorted and words or letters appear to move or become blurred.
There may be difficulties tracking across the page.
White paper or backgrounds can appear too dazzling and make print hard to decipher.

Good lighting can help overcome some visual problems and in particular the avoidance of white boards and white paper. Coloured filters can help settle down visual disturbance.

For further information see Eyes and Dyslexia.

Close attention to the presentation of written material is vital to visual learning. See Dyslexia Style Guide.

What are the symptoms of ADHD?

What are the symptoms of ADHD?
ADHD can present with different behaviours depending on the age, setting (i.e. school, home, playground) and even motivation (e.g. when doing an activity or something a child likes).
Not all children have all the symptoms. This means some can just have problems with poor attention, while others are mainly hyperactive.
Children with problems of attention can appear forgetful, distracted, not seeming to listen, disorganised, take ages to start doing things and then when they do they rarely finish it.
Children with hyperactivity seem restless, fidgety, full of energy ‘always on the go’. They may seem loud, noisy with a continuous chatter.
Children with symptoms of impulsivity do things without thinking. They have difficulty waiting for their turn in games or in a queue, and interrupt people in conversation.
What other problems can a person with ADHD have?

Children with ADHD can have other problems such as learning difficulties, autism, conduct disorder, anxiety and depression. Neurological problems like tics, tourette’s, and epilepsy can also be present. Children with ADHD can have problems with coordination, social skills and seem to be disorganised.

Fri 27th & Sat 28th April 12-ADHD Coach & Behaviour Specialist Lorrine Marer

FREE SESSIONS & OPEN TO EVERYONE
Leading International ADHD Coach & Behaviour Specialist Lorrine Marer
St Margaret’s Lodge Hotel Friday 27th & Saturday 28th April 2012
The Attention Deficit Hyperactivity Disorder (ADHD) Support Group has organised for a leading specialist to visit Guernsey for a series of free workshops and interactive sessions with families, clinical practitioners and support health services, teachers and education department, the general public and anyone e…lse interested in attending.
Lorrine Marer is an experienced behavioural specialist who has been working in the ADHD field in the UK and US for more than a decade. She has two sons, now adults, who were diagnosed with ADHD and Dyspraxia as children.
She trained in many aspects of behavioural and learning difficulties including completing a Cambridge University accredited ADHD Coaching Course, a problem solving course at the Massachusetts Institute of Technology (MIT) and a Triple P Parenting course. She is a firm believer that that society and, in particular, the education system, needs to gain a great deal of further understanding about all these disorders.
Specialising in challenging behaviour and aggressive conduct disorders, she has had huge success in breaking well-established patterns of inappropriate behaviour and getting to the root of complex family problems. The strategies are now being used as a critique in universities and colleges around the country, as well as by health professionals in other countries. She is also asked to contribute as a specialist in this area to a number of radio and television programmes. She has made two well received series for Channel 5, called “Families Behaving Badly” and “The Teen Tamer”. Visit Lorrine Marer’s website : http://www.behaviouralmanagement.co.uk/
Lorrine’s visit will be a wonderful way to expand the experiences and knowledge hearing different techniques and methods for families, educators, clinicians and others that have to cope with the effects of ADHD. Many people have experienced a lack of understanding or the wrong approach in dealing with ADHD children and the broader our understanding is, the better.
The following free sessions held at St Margaret’s Lodge Hotel are:
Friday 27 April
2pm to 4pm – Clinicians, including GPs, Osteopaths and Physiotherapists etc.4.30pm to 6.30pm -Teachers, Carers, Education, Prison Officers, Police, Youth Workers

6.45pm to 8.45pm- Parents, Grandparents, guardians , relatives, & ADHD Adults over 16 (no children at this one)

Saturday 28 April

9am to 11am – Families and their children

11.30 to 1.30pm – Repeat session for both – Clinicians, including GPs, Osteopaths, Physiotherapists etc ,Teachers, Carers, Education, Prison Officers, Police, Youth Workers who cannot attend the Friday afternoon

2.30pm to 4.30pm – Small Group Workshop for Parents & Children

Food and drinks can be purchased at the venue.
To book a free place in one of the sessions please email your name and contact details and which date/time to info@adhdsupport.org.gg
For further information please contact press officer Emma Anderson on candeanderson@cwgsy.net or secretary Jenny Smith 239002/ 07781 125612
Visit out Facebook: ADHD Guernsey
Lorrine Marer – Behavioural Specialist & ADHD Coach

www.behaviouralmanagement.co.uk